Thursday, April 8, 2010
Day 6- March 25th
We then attended a policy panel at the Center for AIDS Prevention located at a UCSF branch. Meeting with different people involved at the Center for AIDS Prevention really showed us how the work being done in the field of HIV/AIDS is so broad. We heard from one woman who had researched the "ballroom" communities and how they dealt with HIV/AIDS, along with sexual health and community. We also heard from a worker from the San Francisco Department of Public Health, who talked about his work in the HIV/AIDS field. Lastly, we learned about WORLD (Women Organized to Respond to Life Threatening Disease), and the efforts to help women dealing with HIV.
Later, we visited the office of Bay Area Young Positives, where we learned about the "actual harm" of various sexual acts by organizing them into a line of increasing "ability to transmit HIV/AIDS". While there, we also made condom packets that we would later pass out during our outreach at The Crib.
We then visited the STOP AIDS Project, where we were instructed on how to fill out special surveys for the organization that would help them assess different needs in the community, especially in the Castro. After we had some basic instruction, we were placed in different stretches of the Castro where we worked to interview people for our surveys, as well as passed out condoms to promote sexual health. While there were definitely some instances of chilly and cold responses, most of the people in the Castro were extremely responsive and friendly- something that I definitely had not expected. This was definitely one of the highlights of our week, as we were able to do some hands-on volunteering work in the community regarding HIV and AIDS.
After our work in the Castro, we worked again with Bay Young Positives at The Crib, an 18+ club in San Francisco that has a large gay and bisexual demographic. We worked also by having people fill out surveys about their own sexual and drug health, as well as handed out the condom packets that we had packed earlier in the day. It was fun being able to meet people who were attending the club, and people were actually friendly and willing to fill out the survey- especially if you caught them while they were just coming in or waiting in line for the bathroom. Comparing the two demographics of the Castro and The Crib was interesting, as the two communities had very different targeted age ranges, but we were doing mostly the same type of work for both.
Jonathan Hsieh
Day 4- March 23
After our tour of their nearby needle-exchange program, we were given talks by one of the directors of the SF AIDS Foundation, as well as one of the leaders of Black Brothers Esteem, a group that promotes sexual health and well-being of the African-American gay and bisexual community. We learned about the national HIV/AIDS hotline run by the SF AIDS Foundation and learned about the many different programs offered by the SF AIDS Foundation.
When we were finished with our visit to the Foundation, we had some free time to explore San Francisco until evening. Some members of our ASB group decided to explore Union Square, Chinatown, and the Castro. In our visit to the Castro, it was the first experience for some of the group to the area, and we were able to see the interesting dynamics existing in the Castro area. We visited "Under One Roof", a store in the Castro run by volunteers, in which all of the proceeds go back towards HIV and AIDS related organizations in San Francisco. It was great for us to be able to see a different factor in the fight against HIV/AIDS, and we noticed that "Under One Roof" supported many of the organizations that we had already visited and some of the ones that we were planning to visit later in the week.
Jonathan Hsieh
Wednesday, March 31, 2010
So we began our day on Monday, early start as usual. We started by going to Project Inform. We had an orientation were we talked to the representatives at Project Inform about HIV/AIDS, its history from the time it began until now. They started in 1985 to educate the growing number of people with HIV at that time. They support their clients through their hot line which is mostly managed by a consistent pool of Volunteers and they also give clients information about support organizations available there. Here we divided into different small groups and began to volunteer. We called different AIDS organizations to update information, so that it is kept current for client use. It was really interesting to call these organizations and talk to them. Some people were definitely nice and positive but we did also get some mean people too. Our group members found it really interesting to be impostors and we had others calling in under the name "Robbie Williams" or in a British accent. That was very funny and thumbs up to you guys for keeping a fun atmosphere.
After Project Inform, we visited the AIDS Legal Reference Panel. This was a completely new and interesting experience. They brought to our notice how HIV is related to legal issues etc as they aid that most people do not consider that aspect as being part of advocating for this disease. The representatives we talked to were very knowledgeable about the issues involved. We talked for example about how insurance companies are taking away the Disability of people who have survived HIV for like ten years because they found them mowing their lawn, and therefore declared then capable of carrying out a day's work. So the legal panel presents these cases to court through attorneys who do this job for free. It was interesting to note their perspective on viewing HIV/AIDS as a chronic illness. This disease is viewed in this way so as to remove the stigma against HIV positive individuals....however, this creates problems with health insurance for the patients. The immigration issues they deal with involving HIV patients where interesting and they are really dedicated to helping people affected/infected by the disease.
After this we had a few hours of free time where group members went around different areas in San Francisco. I returned to Stanford with Crystal and do a few things on campus. The campus was way warmer than San Francisco, but we just grabbed some lunch and headed back.So we were a little late to the HIV planning council due to the heavy traffic. The HIV Council was really interesting though also quite confusing. I think most of the group felt marginalized and we did not really get much interaction with the members. So afterwards we headed back home to prepare dinner and hopefully get some rest. But as you can imagine, we probably "double movied" that is, watched more than one movie, the quote being courtesy of our trip leader who was advicing us to get some rest so as to power up for the next day. Well there were a lot of things planned for day Four........and so far so good.
Thanks guys :)
Tracy Makuvire
Day 5 - Wednesday March 24
Then we headed over to Shanti, which was a neighborhood outreach that focused on providing a support system as well as making sure clients were healthy mentally as well as socially in order to help them prolong their lives and improve their current state of health. As an organization, Shanti seemed to have a decent program and we all learned a little bit about immunology along the way.
Following a quick lunch of homemade sandwiches, we visited the SF AIDS Foundation where we sat in on a Latino Education/Support group. There, we learned about the link between HIV/AIDS and drugs and interacted a bit with the members of the support group. Following the presentation, we heard the inspiring stories of the members and shared some of our own stories. It was an event that touched a lot of us very deeply.
We then rushed back to the house to prepare dinner for our special guest, Jay, who helps Stanford train members of HIVPact and had a discussion over dinner while having such things as stir-fried chicken and vegetables, naan and humus, veggie patties, and breaded chicken. Jay was surprisingly open about many topics and we covered many subjects from legal issues to self experiences. It was a great way to end a long day.
~ Louis
Monday, March 22, 2010
Day Three
First stop: Project Inform
Project Inform is an informational portal and a great resource for HIV + patients. This nonprofit is policy driven and promotes activism within fields like the promotion of new medical strategies and quality health care. Dana Van Gorder, of the Board of Directors for the project, spoke to us about the mission and some of the strides of the organization. One concern that arises from conversation was that many of the HIV/AIDS services, especially those in San Francisco, seem to overlap in terms of service goals, consumers, and methods or split up due to political differences. During reflection, Sonja pointed out that this dispersion of resources, funds, and attention may have a detrimental effect on the programs' efficacy. Others reflected on the nature of service organizations and realized that this prevalence of scattered organizations is a ubiquitous problem in areas beyond HIV/AIDS.
After the enlightening talk from Dana, we were paired up and assigned a list of organizations to call in order to verify/update the contact information for Project Inform's database. None of us had much experiencing with telemarketing, so it was a new and thoroughly entertaining experience.
AIDS Legal Reference Panel
The legal panel was unanimously the highlight of our day. This assembly of highly professional lawyers originated during the onset of the AIDS epidemic and volunteered their time dealing with wills upon an AIDS patient's death. As the disease progressed and inflicted became more sustainable, their jobs evolved into a variety of legal issues from housing to insurance disputes. Apparently, some insurance companies engage in spying activity in order to release some recipients from their insurance policies. There was one instance of a company that spied on and captured evidence of one of its stakeholders pushing a lawn mower. This was used as evidence that this lawn mower was perfectly capable of working and thus is no longer dependent upon the insurance company's support. His policy was shortly terminated. Aside from dealing with these types of litigation, the company also works with HIV/AIDS inflicted foreigners who wish to gain political asylum within the states. Most of the clientele are persecuted, gay men who can show evidence of discrimination from their original countries. This topic spurred much discussion over reflection and invoked principles that generally surround the issue of immigration.
After the legal panel, we dispersed among the gossamer web of SF's downtown retail and restaurants and satisfied our respective needs. Especially notable is the King Thai restaurant where the quality of the food is good, the prices great, and the thai tea, free.
HIV Planning Council
The final activity of the day was sitting in on the HIV Planning Council of San Francisco that was open to public participation. This a monthly committee that consists of members of the community, usually volunteers involved with AIDS/HIV nonprofits or the "consumers" of such programs. The mission statement of the council is as follows: "The council determines the needs of this population, establishes priority for services and allocates funds from Part A of Ryan White Programs. For 2009 the funding amounted to over 26 million dollars for the three county area." As enthused as the majority of the group was over this public forum, we found it difficult to engage in the conversations that were going on. There was some debate among us over the efficiency of the meeting as well as its efficacy. We came to the conclusion that such organizations do bear the heavy burden of trying to be fair, efficient, and receptive to public opinion while executing the plans in a timely and financially savvy manner. There is definitely much to learn and explore in the field of AIDS/HIV public policy and planning.
We look forward what tomorrow has in store!
Links for future reference:
http://www.projectinform.org/
http://www.sfcarecouncil.org/
-Nicole Z.
Sunday, March 21, 2010
Day 2 - HIV Story Project, Tenderloin Health, MCC SF
Saturday, March 20, 2010
SF ASB- Day 1
Tuesday, January 19, 2010
How I found myself getting my blood drawn to test for HIV...
“Let’s take a gamble,” he whispered.
“Let me come inside of you, and if you are pregnant, we’ll marry and live the rest of our lives together.”
Any objective 3rd party would look at this situation and warn the girl, “DON’T DO IT! ARE YOU CRAZY?!” In any case, that’s what I wish I had told myself. There’s something numbing about sexual moments that leave any trace of rationality in that fuzzy place far away. It’s there, but you can’t quite make out its outline, like an old friend from long ago. In its place tugs my guilty desire for romanticism and adventure. The thrill of a risk, and the remote chance of abandoning my ivy-grown life for the simple, rustic lifestyle in the Chinese countryside – like one of those princess-meets-peasant type fairytales. Truthfully, I almost wanted him to get me pregnant.
As soon as we finished, I fell back down to reality. Well, not quite. I went to the opposite extreme and obsessed over the paranoid possibility that I was now HIV positive. My researcher-hat thinking took the reins. He came from a low-income, low-education background, I reasoned, both factors associated with HIV infection. He had had one other partner before, and they didn’t use condoms. He’s never been tested for STD’s. I was going to die of HIV.
That was the last time I saw him, because the next day I flew back to school. I immediately made an appointment for an HIV test. The nurse was nice enough, but I was turned off by her – perhaps a little too unfairly.
“Why are you getting an HIV test today?”
“Because I had unprotected sex.” Why else…
“Was this consensual?” Her straight-faced detachment almost annoyed me.
“Yes, of course.” Why is she asking so many questions. I thought I could just get the test and leave.
“Have you thought about taking emergency contraception?”
I hadn’t even thought about the risk of pregnancy. She showed me the relative risks of HIV and pregnancy. In 20 years, she had seen nine students test positive for HIV, while pregnancy? Too frequent to even remember. Pregnancy was the much more real possibility, but somehow in the whole paranoia mess, I had completely neglected it. I just hear so much scare-talk, about how AIDS is so deadly. Everybody’s talking about it nowadays.
Later I thought about what made me so uncomfortable in the nurse’s office. She was just trying to help. I was defensive – I knew I had done something I shouldn’t have, and I didn’t really want to explore why I did. However, I didn’t really have any protection against repeating that behavior – other than vowing to “never again”. There was also the hypocriticalness of my role as a researcher on HIV, someone who should know the risks, someone ultimately hoping to promote safe practices – and here I was encouraging others to do something I couldn’t even do.
I am now an HIV counselor in my school, providing students with counseling and testing. I don’t tell them what to do. I try to understand and reframe their behavioral motivations. Sometimes, prescriptions can only go so far.